Tim Hines and Jan Delaney present a check for ALS Research to Dr. Merit Cudkowicz at the Day Neuromuscular Lab at Mass General Hospital in December, 2008
A donation for ALS Research was presented by Jan Delaney & Tim Hines to Derek Breau, Dr. Steve Perrin and Jamie Heywood at ALS Therapy Development Institute
My Friend Fran
a story by Lou Kobbs
Fran Delaney was diagnosed with Amyotropic Lateral Sclerosis (ALS), often known as Lou Gehrig's Disease, when he was at the height of his career and his golf game. As someone who had a long career fixing problems and who always faced challenges head on, he decided the best way to fight back was to increase awareness and raise funds for research. With the support of family and friends, the Fran Delaney Foundation was formed over eight years ago. Over the years, the Foundation has built a strong network of 750 volunteers. To date, the organization has held over 60 events. When Fran formed the Foundation, he had a dream and a goal of raising $1M for ALS Research and with the funds raised from the 2008 Golf Tournament, the total raised by the Foundation exceeded $2M! Fran would be so pleased and so proud!!!
With the money raised, we have made grants to the Day Neuromuscular Lab at Massachusetts General Hospital, Dr. Jeffrey Rothstein at the Johns Hopkins Packard Center for ALS Research and to the ALS-Therapy Development Institute. Although Fran lost his long and courageous battle against ALS on March 7, 2005, the Fran Delaney Foundation continues to fight in his memory and honor.
New Mailing Address and Phone Number
We have a new mailing address and phone number.
You can now call us at 781-983-7775.
Our new mailing address is P.O Box 1930, North Falmouth MA, 02556
2009 Tournament Raises $74K!
Our ninth annual Fran Delaney Golf Tournament was held on August 17, 2009 and raised $74,000!
Please mark your calendars so that you can join us at this year's Tournament on Monday, August 16, 2010.
"Thank you for another generous gift to support ALS research under the direction of Dr. Robert Brown and Dr. Merit Cudkowicz. Your philanthrophy provides access to vital resources for identifying, translating and communicating major breakthroughs in the study and management of ALS."
Peter L. Slavin, MD
President
Massachusetts General Hospital
"My thanks for the Fran Delaney Foundation's continued support of Johns Hopkins Medicine. Your gift is an investment in our mission and the lives we touch. Philanthropy plays a crucial role in our ability to advanced medical research and patient care."
William R. Brody, MD
President
Johns Hopkins University